"This is a disease that happens in the darkness, right?" Kelsie said. "It's such an overwhelming disease just to live with that most of the time people can't advocate and can't be a face for it while they're going through it. You go home, and you just try to get through every day, and you're just gutting it out every single day.

"And so, for us to have the opportunity for him to be as healthy as he's been for as long as he's been, really allows us to put a public face to it. And that's the goal, right? It's not, like, 'Oh, we're inspiring.' That's not what we're here for.

"We're here to just say, 'Hey, look at us. There's a ton of other people like us, and we want you to see this disease and understand that it's happening to young families. It's not just happening to grandparents. It's happening to young dads, young moms.'"

-Kelsie Snow, wif of Chris Snow who is battling ALS. Nick Cotsonika of NHLcom has more.